Areas to address | ||
---|---|---|
Domain | Donors | Recipients |
Introduction | − Why the participant became a gamete or embryo donor | − Why the participant(s) required a gamete or embryo donor |
Expectations about information | − Expectations of donor program − What information donors thought they would provide to potential recipients | − Expectations of recipient program − What information the recipients thought would be provided about potential donors |
Experience of program regarding genetic information (obtained from the donor Genetic Health Questionnaire) | − Thoughts after seeing questionnaires − Unexpected information required − Donors experience with the questionnaires − How the donors thought the information would be used by recipients | − Thoughts after seeing completed questionnaires − Unexpected information given − More/less information than previously thought − How recipients used the donor information |
Importance of genetic information | − What information donors thought would be most important to recipients − Medical − Genetic − Personal attributes | − What information was the most important to recipients and why − Medical − Genetic − Personal attributes − Did this remain consistent throughout the recipient process |
Attitudes towards genetic information | − Thoughts on need for genetic information about donor − Options of further genetic screening − Personal and family implications | − Thoughts on need for genetic information about potential donors − Options for further genetic screening |
Any other information required | − Any other information donors feel could have been provided to recipients | − Any other information recipients feel could have been provided about potential donors |