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Table 1 Interview Schedule used for donors and recipients

From: Attitudes of sperm, egg and embryo donors and recipients towards genetic information and screening of donors

 

Areas to address

Domain

Donors

Recipients

Introduction

− Why the participant became a gamete or embryo donor

− Why the participant(s) required a gamete or embryo donor

Expectations about information

− Expectations of donor program

− What information donors thought they would provide to potential recipients

− Expectations of recipient program

− What information the recipients thought would be provided about potential donors

Experience of program regarding genetic information (obtained from the donor Genetic Health Questionnaire)

− Thoughts after seeing questionnaires

− Unexpected information required

− Donors experience with the questionnaires

− How the donors thought the information would be used by recipients

− Thoughts after seeing completed questionnaires

− Unexpected information given

− More/less information than previously thought

− How recipients used the donor information

Importance of genetic information

− What information donors thought would be most important to recipients

 − Medical

 − Genetic

 − Personal attributes

− What information was the most important to recipients and why

 − Medical

 − Genetic

 − Personal attributes

 − Did this remain consistent throughout the recipient process

Attitudes towards genetic information

− Thoughts on need for genetic information about donor

− Options of further genetic screening

− Personal and family implications

− Thoughts on need for genetic information about potential donors

− Options for further genetic screening

Any other information required

− Any other information donors feel could have been provided to recipients

− Any other information recipients feel could have been provided about potential donors